Track & Discuss Longhaul Symptoms!

My Longhaul Story

Since the day that Olivia, our founder, first started to experience symptoms from what we later found was a tick bite, we have been on a journey of constant conversations with countless healthcare providers. Today everyone wants to better understand what symptoms she had, when they started, what they are like now, the severity of the symptoms, etc. So, we embarked on a journey of creating an app solely focused on logging and tracking tick-borne disease (TBD) symptoms to help all those affected by TBDs, but while we were creating the app, the world was hit with a global pandemic. Immediately the main focus was “What are the Symptoms?” We evolved our thinking and came to the conclusion that patients are suffering every day with various conditions, ranging from rare to wide-spread diseases. The one thing they have in common is the ongoing journey of cataloging their symptoms in an effort to better communicate with their healthcare team and caregivers ultimately to ‘get better.’ Olivia has been a ‘longhauler’ for years, as have many in the TBD community, which many have a hard time understanding. Now that the term ‘longhauler’ has become more mainstream since the onset of the pandemic in 2020, our hope with providing this free app is to assist everyone experiencing longhaul/chronic symptoms with their ongoing conversations with their healthcare providers and their personal support systems. We at the LivLyme Foundation, truly believe you when you say, “These are the symptoms I’m experiencing and have experienced for months/years.” Our belief is that through the combination of sharing your journey and data collected along the way that we can make your world, our world, a healthier and happier place.